Pediatric Cancer Care: Implications for the Continuum of Rehabilitation

Seattle, Washington
Saturday, September 16, 2017

Pediatric Cancer Care: Implications for the Continuum of Rehabilitation
Saturday, September 16, 2017 7:00 AM -
Sunday, September 17, 2017 5:00 PM (Pacific Time)

Seattle Children's Hospital
(206) 987-2000
Wright Auditorium
4800 Sand Point Way Northeast
Seattle, Washington 98105
United States

Map and Directions
 

Conference Description:


This intermediate level two day course will provide comprehensive education on optimizing physical, occupational, and speech therapy services in children, adolescents, and young adults with cancer.  The first day will serve as an overview with lectures on the medical management of pediatric oncology with special emphasis on therapy considerations.  The second day will include presentations from therapists that specialize in oncology and will cover case study presentations and panel discussions to explore clinical questions related to the pediatric oncology population.    Presentation topics will be directed toward professionals who work with children with cancer.

Who Should Attend:

  • Physical Therapists/Physical Therapy Assistants
  • Occupational Therapists/Certified Occupational Therapy Assistants
  • Speech Language Pathologists
  • Nurses
  • Rehabilitation Psychologists
  • Certified Therapeutic Recreation Specialists (CTRS)
  • Educators


Accreditation:

OT/COTA/PT/PTA CE...................... 15.5 hours
This course is offered for 1.55 ASHA CEU's (Advanced level, professional area).


Clock Hours.................................... 15.5 hours
ATRA CEU's.....................................1.55
ATRA has approved as Category B program with pre-approved ATRA credits, ID#17016WA

For Nurses Only:
Provider approved by California Board of Registered Nursing, Provider #16541 for 8.0 Contact Hours (Saturday, 9/16/17 only - Approved CNEP #5307)

Provider approved by California Board of Registered Nursing, Provider #16541 for 8.0 Contact Hours (Sunday, 9/17/17 only - Approved CNEP #5308)


Conference Fee:
Day One & Two:

Early Registration: $275 until July 21, 2017
Standard Registration: $325 until September 3, 2017
(Group Discount at $275/person during standard registration for a group of 3 or more)
Late Registration: $375 after September 4, 2017

 

Day One (Nursing Staff Only):                   

Standard Registration: $150 until September 3, 2017

Late Registration: $200 after September 4, 2017

*Cancellations received by September 1, 2017 will be issued a full refund minus an administrative fee of $25.00. No refunds will be issued after September 1, 2017.



Conference Agenda:

Saturday, September 16, 2017        
7:30 am         Registration and Continental Breakfast

8:00 am         Pediatric ALL and AML Phases and Treatment

Alison Thomsen, RN, CPON

9:00 am         Brain Tumors: Overview, Acute Surgical Complication & Long Term Treatment (15 Minute Break Included)

                        Mandy Breedt, ARNP, PNP

                        Susan L. Holtzclaw, MN, ARNP

                        Sarah Leary, MD, MS

11:00 am       Bone Marrow Transplant: Overview and Treatment

                        Course

                        Alison Thomsen, RN, CPON

12:00 pm      LUNCH (Provided)

12:45 pm      AYA (Adolescent-Young-Adult) Cancer Care

                       Tyler G. Ketterl, MD

1:45 pm        Psychology in Cancer Care: Coping Strategies &

                       Managing Transitions

                       Joanna Thome Patten, Psy.D.

2:45 pm        Break

3:00 pm        Communication (at the End of Life): A Palliative Care

                       Approach

                       Jeff Beck, MD

4:00 pm        CAR T-Cell Therapy

                       Colleen Annesley, MD

5:00 pm        Evaluation & Adjourn

Sunday, September 17, 2017
7:30 am       
Registration and Continental Breakfast

8:00 am        Pediatric Cancer Rehabilitation

                       Elaine Tsao, MD

9:00 am        Supporting Occupational Performance in the Setting of

                       Peripheral Neuropathy

                       Shelby Ubrich, OTR

10:00 am      Break

10:15 am      Speech-Language Pathology in the Setting of Pediatric

                       Oncology

                       Kristin Lyons, MA, CCC-SLP

 

11:15 am      Exercise to Prevent Frail Health During and Following Treatment for Childhood Cancer

                       Kiri Ness, PT, PhD, FAPTA

12:15 pm      LUNCH (Provided)

1:00 pm        Cancer Rehab: Case Studies

                       Ashley Braswell, PT, DPT, PCS

                       Caryn Deskines, MS, CCC-SLP

                       Milena Sturm, OTR/L


2:45 pm        Break

3:00 pm        Cancer Rehab: Integrating Multiple Points of View and Open Discussion

                       Kristin Lyons, MA, CCC-SLP

                       Tiffany Morgan, MS, CCC-SLP

                       Kiri Ness, PT, PhD, FAPTA
                      
Madelaine Stoer, MS, OTR/L
                      
Gail Svitil, MS, PT
                       Shelby Ubrich, OTR 

           

5:00 pm        Evaluation & Adjourn

Conference Objectives:

 

After this conference, participants will be able to: 
Day 1:
  • Identify 3 factors that impact risk in pediatric leukemia
  • Outline 3 differences in therapy between Acute Lymphoblastic Leukemia and Acute Myeloid Leukemia
  • Describe 3 complications of therapy for pediatric leukemia
  • Describe brain tumor signs, symptoms and diagnosis procedures
  • Identify postoperative precautions and potential complications of patients with brain tumor excision.
  • Identify 2 consequences related to location of brain tumor and how it affects functional recovery needs from the multidisciplinary rehab team (short term and long term)
  • Describe how transplant treats malignant and non-malignant diseases
  • Identify the 4 phases of transplant
  • List 3 indication for therapy in the post transplant patient
  • Identify 3 unique challenges that Adolescent and Young Adult (AYA) cancer survivors face
  • Describe the most common disparities, psychosocial, physical and financial concerns in AYA survivors
  • Describe Cognitive Behavioral Therapy (CBT) as it relates to adjustment difficulties experienced by children with cancer
  • Identify 4 coping strategies for patients and families in dealing with stressors associated with transition and living with cancer
  • Identify 2 important aspects of self-awareness to promote open, honest communication when engaged in difficult conversations.
  • Describe a palliative (narrative) approach to therapy-related discussion with a patient or family.
  • List 3 techniques to foster empathy in difficult conversations
  • Describe eligibility and the process of delivering CAR T cell therapy
  • List 3 management strategies to offset side effects/toxicities in CAR T cell therapy
Day 2:
  • Describe the benefit of cancer rehabilitation on functional outcomes
  • Identify 2 potential complications related to cancer treatment in children with leukemia
  • Identify 2 potential complications related to cancer treatment in children with brain and spinal cord tumor
  • Describe causes of peripheral neuropathy within the oncology population
  • Describe functional implications of peripheral neuropathy
  • Describe medical approaches and OT treatment support for managing symptoms of peripheral neuropathy
  • Describe the role of speech-language pathology in the management of pediatrics with cancer
  • Describe current evidence in developing evaluation and treatment strategies during and after treatment of cancer in pediatrics
  • Name 3 benefits of exercise and fitness for long-term health
  • Describe 2 methods to encourage initiation of fitness and exercise during cancer therapy in children
  • List 3 methods to improve fitness soon after cancer therapy and during late effects as adult survivors
  • Describe the changing role of therapy through stages of cancer treatment and recovery
  • List 2 approaches of each therapy domain during different phases of cancer treatment: OT
  • List 2 approaches of each therapy domain during different phases of cancer treatment: PT
  • List 2 approaches of each therapy domain during different phases of cancer treatment: Speech

Keynote Speakers:

Kristin Lyons, MA, CCC-SLP,
Speech-Language Pathologist, Rehabilitation Services, St. Jude Children’s Research Hospital
Bio
: Kristin is a speech-language pathologist in the Rehabilitation Services department at St. Jude Children’s Research Hospital.  In this role, she provides direct patient care for children and adolescents receiving cancer-directed treatment and assists with several research protocols and projects.  Currently, she is an Evidence-Based Practice Fellow conducting a project aimed at identifying the characteristics of young children with solid tumors who are experiencing chemotherapy-associated feeding difficulty and mismanagement.  Additionally, she is a co-investigator on a research protocol to evaluate the effects of treatment on development and the need for early intervention in children with retinoblastoma.

Kristin obtained her undergraduate and graduate degrees from the University of Illinois at Urbana-Champaign in 2010 and 2012, respectively.  An avid reader and Cubs fan, Kristin also enjoys spending time outdoors and pretending to be a pastry chef.
Disclosures: Financial: Salary from St. Jude Children's Research Hospital. Non-Financial: None.

Kirsten (Kiri) Ness, PT, PhD, FAPTA,
Physical Therapist, Epidemiology and Cancer Control, St. Jude Children’s Research Hospital
Bio
: Kiri is a physical therapist and clinical epidemiologist and Member of the faculty at St. Jude Children’s Research Hospital.  She has a BA in Physical Therapy, an MA in Leadership and an MPH and PHD in Epidemiology.  She is a Catherine Worthingham Fellow of the American Physical Therapy Association and has been in Physical Therapy practice for over 30 years.  Her research focuses on the observation and remediation of functional loss and frail health among persons who were treated for cancer during childhood.  She has been funded by the American Cancer Society, the Gabrielle’s Angel’s Foundation, the National Cancer Institute, and the National Institute of Child Health and Human Development.  She has over 200 peer reviewed publications and serves on the Steering Committees for the Childhood Cancer Survivor Study and the Children’s Oncology Group Survivorship and Outcomes Committee.  She is an active member of the Oncology Section of the American Physical Therapy Association, and on the Editorial Boards of Pediatric Physical Therapy, Rehabilitation Oncology, Physical Therapy, Pediatric Blood and Cancer, and the Journal of Clinical Oncology.    
Disclosures: Financial: Salary from St. Jude Children's Research Hospital; Grant/Research Support currently from National Cancer Institute, previously from American Cancer Society, Gabrielle's Angel's Foundation, National Institute of Child Health and Human Development. Non-Financial: None.

Shelby Ubrich, MOT, OTR,
Senior Occupational Therapist, Rehabilitation Services, MD Anderson Cancer Center, University of Texas

Bio: Shelby Ubrich graduated from Texas Woman’s University in 2009 and has been practicing as an occupational therapist at M.D. Anderson Cancer Center for seven and a half years. As a Senior Occupational Therapist, Shelby has spent most of her career working with the neuro-oncology and neurosurgical patient population; experience also includes working with the hematology patient population and acute inpatient rehabilitation. She is an active member of various committees within and outside of the institution, one of which is serving as a chair to a self-catheterization PACT. Outside of M.D. Anderson, Shelby is an active member of the young professionals group with Candlelighters, an organization serving children affected by cancer and their families. She annually serves as a camp counselor and participates in numerous fundraiser events with Candlelighters. Shelby has a passion for participating in various bike rides and 5K events that support fundraising efforts for cancer research.
Member of AOTA, TOTA, and NBCOT certified.

Disclosures: Financial: Salary from MD Anderson Cancer Center. Non-Financial: None.


Speakers:

Mandy Breedt, ARNP, PNP

Nurse Practitioner, Neurosurgery, Seattle Children’s Hospital
Bio: Mandy earned her Baccalaureate degree at the University of Washington. After growing up in Johannesburg South Africa and volunteering in hospitals there she developed a passion for nursing. Initially on graduation she began her career as an Oncology/Bone Marrow Transplant nurse caring for critical ill pediatric patients. It was during this experience that she developed a desire to practice in a more active way in the diagnosis and medical management of patients and returned to the University of Washington to obtain her Masters of Science in Nursing. While studying she transition to a role of the Primary Brain Tumor RN. This role entailed care coordination and management of all brain tumor patients from diagnosis to at times end of life care. This role developed a passion for the specialty of neurosurgery. Therefore after graduation Mandy starting work as a PNP with in the Division of Neurosurgery at Seattle Children’s, where she has been practicing for the last 8 years. She is passionate about the art of Neurosurgery and caring for this population, as well as educating others about these diagnoses and the management involved. She was a contributor to the book Care of the Pediatric Neurosurgery Patient, Cartwright/Wallace and coauthored the chapter “Hydrocephalus”. She has spoken at local and national conferences on topics such as Palliative Care in the Neurosurgical Population, Acute Neurosurgical decline, Posterior Fossa Syndrome and Why is this Neurosurgery Patient in my Primary Care Practice.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Susan L. Holtzclaw, MN, ARNP
Nurse Practitioner, Hematology-Oncology, Seattle Children’s Hospital
Bio:
Susan Holtzclaw, MN, ARNP, is a graduate of Mississippi State University with a bachelor’s degree in biology followed by University of Memphis’ Loewenberg School of Nursing, where she earned a bachelor’s degree in nursing in 2006 followed by a Master’s Degree in nursing in 2010.
Holtzclaw currently practices as a nurse practitioner on the neuro-oncology team at Seattle Children’s Hospital. She treats neuro-oncology patients from time of diagnosis through and beyond treatment. Previously, she practiced with the inpatient medically complex child population at Seattle Children’s Hospital, with a strong focus on medical management, patient continuity, resident education, and palliative and end of life care. As a registered nurse, she cared for the solid tumor patient population at St. Jude Children’s Research Hospital in Memphis, TN.
Holtzclaw is a board certified family nurse practitioner, and has been practicing at Seattle Children’s Hospital since 2011.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Sarah Leary, MD, MS
Attending Physician, Hematology-Oncology, Seattle Children’s Hospital
Associate Professor, Pediatrics, University of Washington
Bio:
Sarah Leary is a pediatric neuro-oncologist at Seattle Children’s Hospital, Associate Professor of Pediatrics at the University of Washington, and an investigator in the Center for Clinical and Translational Research at the Seattle Children’s Research Institute. She completed medical school at the University of Tennessee Health Sciences Center in Memphis followed by specialty training in Pediatrics at Johns Hopkins Hospital and Pediatric Oncology training with a focus on Neuro-Oncology at St. Jude Children’s Research Hospital. She has been a member of the faculty at UW and Seattle Children’s since 2009. Her clinical and research focus is on improving survival for children with brain tumors through the development of new treatments and clinical trials.
Disclosures: Financial: Salary from Children's University Medical Group. Non-Financial: None.

Alison Thomsen, RN, CPON
Clinical Educator, Cancer Care Unit, Seattle Children’s Hospital
Bio:
Alison Thomsen has over 30 years experience in pediatric hem/onc nursing. She graduated in 1983 in Manchester, England. She came to the states as a travel nurse in 1990 and was able to experience pediatric hematology, oncology and stem cell transplant nursing in many hospitals and states before settling down at Seattle Children’s in 1999 where she has worked on the Cancer Care Unit as a staff nurse and clinical educator. Alison lives in Wallingford with her husband and 8 year old daughter and is passionate about modern art, mixology and great food.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Tyler G. Ketterl, MD
Fellow, Pediatric Hematology-Oncology, Seattle Children’s Hospital, University of Washington
Bio:
Tyler Ketterl, MD is a pediatric oncology fellow at University of Washington with board certifications in both Internal Medicine and Pediatrics with a particular interest in Adolescents and Young Adults. Tyler is currently funded on the University of Washington/Fred Hutchinson Cancer Research Center/Seattle Children’s Hospital Pediatric Hematology/Oncology T32 training grant with my current research primarily focusing on adolescent and young adult (AYA) cancer survivors and the long-term impacts of cancer therapy. Adolescents and young adults with cancer have been identified as a unique and high risk patient population with inferior health and psychosocial outcomes. These disparities drive him to perform rigorous study of patient and family outcomes during and after cancer directed therapy in order to improve these outcomes and eradicate these disparities.
Disclosures: Financial: Salary from Children's University Medical Group; Grant/Research Support from National Institutes of Health Award T32CA009351. Non-Financial: None.

Joanna Thome Patten, Psy.D.
Clinical Psychologist, Psychiatry and Behavioral Health, Seattle Children’s Hospital
Bio:
Dr. Patten is a pediatric psychologist at Seattle Children's Hospital and works with the Psychosocial Oncology team in the Cancer and Blood Disorders Center. Her clinical work includes serving inpatient and outpatient populations ranging from diagnosis to long term follow up and she also teaches several parenting classes in Outpatient Psychiatry. In response to patient and family requests, Dr. Patten has started a group therapy program for patients and families through the Cancer and Blood Disorders Center. Dr. Patten has also been developing a training platform to provide psychology trainees with opportunities to specialize in working with children with cancer and their families. Dr. Patten presents regularly at national conferences and has been an invited speaker for local community groups, including school districts and parenting groups. Dr. Patten recently served on the Board of Trustees for the Washington State Psychological Association and is an active member of the Society of Pediatric Psychology and the Hematology/Oncology Special Interest Group.
Disclosures: Financial: Salary from Seattle Children's Hospital, private practice (sole proprietor) Non-Financial: None.

Jeff Beck, MD
Attending Physician, Pediatric Advanced Care Team, Seattle Children’s Hospital
Medical Director, Pediatric Palliative and Hospice Team, Providence Hospice of Snohomish County
Bio:
Jeff Beck, MD is an Attending Physician on the Pediatric Advanced Care Team (Palliative Care) at Seattle Children’s and Medical Director for the Pediatric Palliative and Hospice Team through Providence Hospice of Snohomish County.
Disclosures: Financial: Salary from Children's University Medical Group and Providence Hospice of Snohomish County. Non-Financial: None.

Colleen Annesley, MD
Attending Physician, Hematology-Oncology, Seattle Children’s Hospital
Assistant Professor, University of Washington
Bio:
Colleen Annesley, MD is an Attending Physician in Pediatric Oncology at Seattle Children’s Hospital and an assistant professor through the University of Washington. Dr. Annesley completed her pediatric oncology fellowship at Johns Hopkins Hospital, where her research interests focused on the biology and targeting of molecular aberrations in high-risk pediatric acute leukemia. She joined the immunotherapy team upon coming to Seattle Children’s in September 2015. Dr. Annesley is part of the team involved with treating patients on the current PLAT (Pediatric and Young Adult Leukemia Adoptive Therapy) clinical trial with CD19 CAR T cells, and she is also involved in the development of future PLAT trials. She is particularly interested in identifying and treating the mechanisms of resistance and escape from CAR T cell therapy.
Disclosures: Financial: Salary from Seattle Children's Hospital and University of Washington. Non-Financial: None.

Elaine Tsao, MD
Attending Physician, Rehabilitation Medicine, Seattle Children’s Hospital
Acting Assistant Professor, University of Washington
Bio:
Dr. Elaine Tsao is pediatric physiatrist who trained at University of Washington for Rehabilitation Medicine residency and Seattle Children’s Hospital for fellowship in Pediatric Rehabilitation Medicine. She is currently an attending physician at Seattle Children’s Hospital, seeing patients in both outpatient and inpatient settings. While Dr. Tsao sees patients with various diagnoses, she has a particular interest in pediatric cancer rehabilitation. Dr. Tsao authored a publication article titled “Functional Outcomes and Unplanned Transfers of Pediatric Patients With Central Neurological Impairments Receiving Inpatient Rehabilitation Care With Cancer and Noncancer Diagnoses”. In addition to her clinical work, she is also the director for the Neurorehabilitation didactic course for Rehabilitation Medicine residency at University of Washington.
Disclosures: Financial: Salary from Children's University Medical Group. Non-Financial: None.

Caryn Deskines, MS, CCC-SLP
Speech-Language Pathologist, Rehabilitation Services, Seattle Children’s Hospital
Bio:
Caryn is a speech-language pathologist specializing in Acute Care Services at Seattle Children’s Hospital, across the PICU, CICU, Medical, Surgical, and Hematology-Oncology inpatient services, providing evaluation and treatment in the areas of swallowing, feeding, cognitive-communication, language, functional communication, and speech production skills for a variety of pediatric populations, diagnoses, and ages.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Milena Sturm, MS, OTR/L
Occupational Therapist, Rehabilitation Services, Seattle Children’s Hospital
Bio:
Milena Sturm OTR/L graduated from University of Washington with a Masters of Occupational Therapy in 2006. She has a career long history of working with patients with cancer including both inpatient and outpatient. Milena has experience working with both pediatrics and adults with blood cancers, transplants as well as solid tumors. Milena has experience with return to school, OT in the schools, and post rehabilitation recovery. Milena also specializes in sensory feeding, fine motor skills building and play based therapy.
I enjoy spending time with my family, going to the beach, floating in the lake, playing in the back yard and golfing.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Ashley Braswell, PT, DPT, PCS

Physical Therapist, Rehabilitation Services, Seattle Children’s Hospital
Bio:
Ashley Braswell is a pediatric physical therapist working at Seattle Children’s Hospital in Seattle, Washington. Ashley graduated from Ithaca College with a doctorate of physical therapy in 2008. She works full time in the inpatient cancer care unit seeing hematology and oncology patients through various phases of medical treatment, including bone marrow transplantation. She is a member of the pediatric and oncology sections of the APTA and has achieved her pediatric clinical specialist designation.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Tiffany Morgan, MS, CCC-SLP
Speech-Language Pathologist, Seattle Children’s Hospital
Bio:
Tiffany Morgan, MS, CCC-SLP, is a speech language pathologist at Seattle Children’s Hospital. She received both her B.S. in Speech and Hearing Science and M.S. in Speech Language Pathology from the University of Washington. Tiffany has been on the acute care therapy team for over 17 years and specializes in the evaluation and management of inpatients with developmental and acquired speech, language, cognitive-communication, functional communication, feeding and swallowing disorders in the context of their current hospitalization and long term treatment plans.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Madelaine Stoer, MS, OTR/L
Occupational Therapist, Rehabilitation Services, Seattle Children’s Hospital
Bio:
Madelaine has been an occupational therapist on the inpatient cancer care unit at Seattle Children’s hospital for 7 years. She provides occupational therapy evaluations and treatments for children, adolescents and young adults undergoing treatment for oncology/hematology diagnoses and bone marrow and blood stem cell transplants. She is currently the primary investigator on a research protocol exploring acute care occupational therapy service delivery for adolescents and young adults at SCH.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

Gail Svitil, MS, PT
Physical Therapist, Rehabilitation Services, Seattle Children’s Hospital
Bio:
Gail is an outpatient physical therapy at Seattle Children’s Hospital where she specializes in Oncology and Blood Disorders.
Gail has a Master of Science in Physical Therapy from University of Southern California (1976) and a Bachelor of Science degree in Zoology from the University of California at Davis. Gail has over thirty years of pediatric physical therapy experience spending the last 15 years working with pediatric and adult oncology/hematology patients at the University of Washington Medical Center and Seattle Children’s Hospital.
Gail is certified in NDT, Sensory Integration Tests Theory and Treatment and PNF.
She is licensed in both WA and California.
Disclosures: Financial: Salary from Seattle Children's Hospital. Non-Financial: None.

 

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