National Marfan Foundation Conference 2011

Portland, Oregon
Thursday, July 14, 2011


National Marfan Foundation Conference 2011
Thursday, July 14, 2011 12:00 PM -
Sunday, July 17, 2011 3:00 PM (Pacific Time)

Marriott Portland Downtown
(503) 226-7600
1401 SW Naito Parkway
Portland, Oregon 97201
United States

Map and Directions
Adult Saturday Workshops
Aortic Surgery in Children/Teens 5:00 - 6:00  C3
Aortic Surgery- Options 2:30 - 3:30  F1
Cardiac Imaging and Radiology: Understanding Your Imaging Studies  3:45 - 4:45  D2
Cardiac Issues 2:30 - 3:30  E1
Cardiac Issues  5:00 - 6:00   E3
Dental Issues 5:00 - 6:00  G3
Eating to Reduce Pain and  Increase Energy 5:00 - 6:00  I3
Exercise and Staying Fit 3:45 - 4:45  A2
Genetic Testing; Limits/Benefits in Diagnosis 5:00 - 6:00  A3
Growing Older with Marfan Syndrome 2:30 - 3:30  H1
Loeys- Dietz Syndrome 2:30 - 3:30  I1
Loeys- Dietz Syndrome: Cardiac Surgery  3:45 - 4:45  I2
Marfan 101 2:30 - 3:30  A1
Non-surgical Approaches to Dural Ectasia and Back Pain 5:00 - 6:00  B3
Ocular Corrections & Visual Rehabilitations 3:45 - 4:45  G2
Ocular Issues- General 2:30 - 3:30   G1
Orthopedic Issues 2:30 - 3:30  B1
Pediatric Cardiac Issues 2:30 - 3:30  C1
Pediatric Cardiac Issues 5:00 - 6:00  D3
Pediatric Issues 2:30 - 3:30  D1
Pediatric Orthopedic Issues 3:45 - 4:45  B2
Planning a Family: Preimplantation Genetics, Genetic Diagnosis, Adoption 5:00 - 6:00  F3
Post Dissection Cardiac Concerns 3:45 - 4:45  E2
Pre-conception, Pregnancy, and Postpartum Cardiovascular Management 3:45 - 4:45  F2
Pulmonary Issues 3:45 - 4:45  H2
Sleep Apnea 5:00 - 6:00  H3
Vascular Surgery Aneurysms Affecting Vessels other than Aorta 3:45 - 4:45  C2
Young Adult Track: College and Work: Know Your Rights 5:00 - 6:00   J3
Young Adult Track: Planning a Family: Preimplantation Genetics 2:30 - 3:30  J1
Young Adult Track: Transitioning to Adult Care 3:45 - 4:45  J2

Teen Saturday Workshops
Genetics 101 10:15 - 11:00  T2
Marfan Syndrome Q&A 11:15 - 12:00  T6
Preparing for College 10:15 - 11:00  T1
Reaching for New Heights 11:15 - 12:00  T8
Related Disorders Q&A 11:15 - 12:00  T7
Sibling Support 11:15 - 12:00  T5
Taking Control of Your Health 10:15 - 11:00  T3
You Can Be an Advocate 10:15 - 11:00  T4


Adult Sunday Workshops
Becoming an NMF Volunteer/Fundraising for the NMF 11:30 - 12:45  C6
Best Practices Using Social Media  10:00 - 11:15  H5
Communicating with Your Child's School   8:30 - 9:45  C4
Communicating with Your Doctors   8:30 - 9:45  B4
Coping with Loeys Dietz Syndrome 10:00 - 11:15  B5
Coping with Marfan Syndrome   8:30 - 9:45  A4
Coping with Marfan Syndrome 10:00 - 11:15  A5
Coping with Related Disorders 11:30 - 12:45  A6
Developing Your Emergency Plan 11:30 - 12:45  B6
Facing Orthopedic Surgery 10:00 - 11:15  F5
Medical Insurance and Disability Issues   8:30 - 9:45  D4
Pain Management    8:30 - 9:45  F4 
Should You Participate in a Research Study? 11:30 - 12:45  F6
Support Group for Couples   8:30 - 9:45  E4
Support Group for Fathers 11:30 - 12:45  E6
Support Group for Mothers 11:30 - 12:45  D6
Support Group for Parents of Teens 10:00 - 11:15  D5
Support Group for Unaffected Spouses and Significant Others 10:00 - 11:15  E5
Teen Perspective: Q&A for Parents Led by Teens  10:00 - 11:15  C5
Town Meeting   8:30 -  9:45  H4
Young Adult Track: Relationships and More Part I    8:30 -  9:45  G4
Young Adult TracK: Relationships and More Part 2 (Gender Breakouts)  10:00 - 11:15  G5
Young Adult Track: Support Group for Young Adults  11:30 - 12:45  G6

 

Contact Information

Payment Instructions

  • Scholarship Applicants
    If you intend to apply for a scholarship, please do not register until after you have received an acceptance letter.

    Credit Cards
    We accept the following credit cards: American Express, MasterCard, Visa, Discover.

    International credit cards issued by non-US banks are not accepted. In addition, payment with an international credit card that does not use the address checking feature will be declined by this system. Please email us if this happens to you and we will give you instructions to wire the funds to our bank.

    Debit Cards
    Debit cards will not be accepted unless they have been pre-authorized for credit purchases.

    Payment by Check
    I M P O R T A N T

    Checks will be accepted with on-line registration. However, to ensure proper credit, return your check with a copy of the registration acknowledgment or write your reference # on the front of the check.
     
    Payment must be received within 10 days of registration. 
    Mail to:
    National Marfan Foundation
    22 Manhasset Ave.
    Port Washington, NY 11050

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