2012 Phelan-McDermid Syndrome Int'l Family Conference & Scientific Symposium

Orlando, Florida
Wednesday, July 25, 2012

Program at a Glance - will be updated as additional details become available.
Items in Red are included in the Scientific Symposium registration fee. 
Items in Green are included in the Family Conference registration fee.

Click here for
Detailed Family Conference agenda.

Click here for Detailed Scientific Symposium agenda.
For the Young Investigator's Call for Abstracts, click here.

Wednesday, July 25th   
7:00 am - 9:00 am  Scientific Symposium Registration
8:30 am - 5:30 pm Scientific Symposium Sessions
12:00 pm - 8:00 pm Family Conference Registration
2:00 pm - 5:00 pm New Family Orientation
5:30 pm - 7:30 pm Scientific Symposium Reception
 Thursday, July 26th  
8:00 am - 12:00 pm Family Conference Registration
8:30 am - 5:30 pm Scientific Symposium Sessions
9:00 am - 5:00 pm Family Support Day  Sessions
6:30 pm Family Conference Group Dinner
Friday, July 27th  
9:00 am - 1:00 pm                         Family Conference - Educational Expo
8:00 am - 5:00 pm                        Family Conference - Medical Day - Sessions
8:00 am - Noon                              Complimentary Family Portraits
8:00 am - 5:00 pm                        Blood draws for Repository
8:30 am                                            Optional Sibling Sea World Trip (ages 7 and up)
7:00 pm                       Family Reception
Saturday, July 28th  
9:00 am - 5:00 pm                         Education and Learning Day - Sessions 
7:00 pm                                            Baseball on the Lawn

In order to ensure that we provide the best atmosphere for our speakers and attendees, we do not recommend children attend sessions.  Registered siblings are encouraged to attend the Sibling Sessions and to take advantage of Courtney's Clubhouse - all kids, all ages (under 10 must be accompanied by an adult) or Club 22 - for those 13-17(siblings only).

Childcare during the Family Conference:
Some families travel with a child care provider or extended family to supervise children while the parents attend the sessions.  For other families, this may not be possible; therefore on-site child care is available.  Kids Nite Out will set up group child care in the convention center.  The staff is qualified to work with children with special needs, and can accommodate children that are not toilet trained.  The child care center will open 30 minutes before sessions begin each day and close 30 minutes after sessions end for the day.  The cost for this group child care is $10 per child per hour, with a 2 hour minimum.  Preregistration is required - click here.  Meals are NOT included in the child care program.

Individual in-room child care is also available; if you would prefer this option, or want childcare during the evening events, you can make arrangements directly with Kids Nite out.  Rates vary (with a 4 hour minimum) and advance reservations are required (2 weeks in advance).  Call 407-828-0920, ext. 0 to make reservations.

Click here for more information about the EXPO.




Contact Information

  • Vicki@pmsf.org


    If you need to register, or make changes to your registration, please contact Vicki. 
    (Please keep in mind she is on the East Coast of the US, use email if possible)

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