Catch the Wave 2019: PROMISĀ® Clinical and Methodology Advances

San Diego, California
Thursday, October 24, 2019
Catch the Wave 2019
PROMIS® Clinical & Methodology Advances

Information will be presented in a two-day format comprised of workshops, plenary sessions, concurrent oral presentations, poster walks and informal networking opportunities for attendees.

Catch the Wave 2019: PROMIS® Clinical and Methodology Advances will feature two concurrent oral presentation tracks: one focusing on clinical applications of PROMIS measures and the other on methodology and research.

Optional workshops will be offered Thursday, October 24th from 9 am - Noon. A special evening networking social event will take place Thursday, October 24th.

Featured Speakers: 

Laura Lee Johnson, PhD, Director Division III, Office of Biostatistics, OTS, CDER
Laura Lee Johnson specializes in design, logistics, and analysis of research from clinical outcome assessment (COA) qualification to trials of all sizes. Her division covers a wide variety of therapeutic areas including numerous rare diseases. She works across FDA on patient focused drug development and rare disease initiatives, master protocols, and other programs. Prior to working at the FDA, she spent over a decade at the U.S. National Institutes of Health working on and overseeing clinical research and research support programs.

Maria Orlando Edelen, PhD, Rand Corporation

Maria Orlando Edelen is the senior behavioral scientist and psychometrician at the RAND Corporation.  Her research focuses primarily on the application of item response theory (IRT) to instrument development, evaluation, and refinement in behavioral health contexts, with particular emphasis on the study of patient reported outcomes (PROs).

Janel Hanmer, MD, PhD, University of Pittsburgh

Dr. Hanmer’s primary research focus is on health-related quality of life measurement, particularly health unity measurement.  Her previous work has focused on the use of legacy measures.  She has often worked with population-based datasets, such as the Medical Expenditures Panel Survey.

Brennan Spiegel, MD, MSHS, Cedars-Sinai Site Director, Clinical and Translational Science Institute (CTSI)

Brennan Spiegel, MD, is the director of Cedars-Sinai Health Services Research. He directs the Cedars-Sinai Center for Outcomes Research and Education (CS-CORE), a multidisciplinary team that investigates how digital health technologies — including wearable biosensors, smartphone applications, virtual reality and social media — can strengthen the patient-doctor bond, improve outcomes and save money. CS-CORE unites clinicians, computer scientists, engineers, statisticians and health services researchers to invent, test and implement digital innovations, always focusing on the value of technology to patients and their providers.


Contact Information

  • Julie Kay, MPH
    Conference Organizer
    Phone: 312-503-1725

    Conference Chairs

    Clifton Bingham, III, MD

    Professor of Medicine
    Johns Hopkins University

    Ron D. Hays, PhD

    Professor of Medicine
    University of California
    Los Angeles

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