SYNGAP1 Family Meet Ups – Our goal is to bring families impacted by SYNGAP1 mutations together. These meetings provide opportunities for new and familiar faces to come together to share experiences, learn from each other and experts in the disease, and offer one another support and hope. Our aim is to empower the patient families with a strong and knowledgeable community of SYNGAP1 advocates. Clinicians and Scientists will be presenting information on current research and be available to answer questions in an open forum.
PLEASE READ DISCLOSURES BELOW:
Please register all parties in the group under the same registration.
No Refunds, All sales final.
Registration fee of $40 includes educational materials, continental breakfast, boxed lunches, snacks and family meet up t-shirts.
Families will be required to provide their own caregiver. A room will be provided for childcare with activities for entertainment during the conference. Children will not be admitted in the conference area during the presentations.
Hotel blocked rooms are limited and are on a first come first served basis. If rooms become full, participant will be required to arrange their own hotel accommodations.
SYNGAP Family Meet Up Room Block:
Houston Marriott Medical Center/Museum District
6580 Fannin Street, (Driveway Entrance on 1730 Dryden Road) Houston TX 77030
Start date: 8/15/19
End date: 8/18/19
Last day to book: 7/18/19
Bed availability information:
King beds dates: 08/16/19 – 08/18/19
Double beds dates: 08/15/19 – 08/18/19
Book your group rate for SYNGAP Family Meet Up Room Block at the following link:
Cut-off Date: Thursday, July 18, 2019, all unused rooms without a name to a reservation will be release after that date.
Room Rate: $129 per night plus taxes (if tax exempt, please provide correspondent document)
Billing Method: Individuals to Pays on Own (Guest will need to provide a method of payment upon check-in for all charges)
Cancellation: 72 hours cancellation fee will apply to all the sleeping room.
Standard Parking Rates (subject to change):
Overnight – valet parking, fee: $28 USD daily
Available in the Scurlock Towers Garage; Entrance on 6535 Main St.
Garage is owned/managed by Scurlock Tower and therefore charges cannot apply to master account or individual account.
Up to $13 USD daily, no in/out privileges
APPOINTMENTS FOR CLINIC FRIDAY, AUGUST 16:
Texas Children's COE Clinic Study will be on Friday, August 16. Appointments will be in the morning are there will be limited spots available. Families bringing children to participate will need to call Truzella at +1 832-822-1530.
Please bring SYNGAP1 Patient's Genetic Report (required to participate in the study) and Laptop (if available)
All purchases are final and no refunds will be given. We look forward to seeing you at the conference.
If you have any questions or concerns please contact at email@example.com
BTG SYNGAP Research Team