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BTG Family Meetup Baltimore
Friday, November 08, 2019 8:00 AM
Saturday, November 09, 2019 4:30 PM
Kennedy Krieger Institute
707 North Broadway
Phone: (240) 347-0302
Our goals are to provide support, education, and resources. Foundation representatives will provide up to date research information and present current findings on data collected from the SYNGAP1 Registry and Natural History Study. This will also afford better communication and patient engagement in the ongoing research driven by the foundation registry charter. Clinicians and scientists will be presenting information on current research and be available to answer questions in an open forum. This will also give families an opportunity to ask questions and get clarification from the experts. The education the families will take away from the meeting is intended to reach treating clinicians of SYNGAP1 patients and give families and caregivers a secure knowledge base of the disease and how to best approach available treatments.
Join us after the Baltimore Meetup to celebrate the last 5 years of BTG SYNGAP1 Research and Education. We have a special program featuring Beyond the Diagnosis Art Exhibit, A
wards Ceremony and a look back at the grassroots efforts to mark SYNGAP1 on the World Map.
Sat, November 9, 2019
7:00 PM – 11:00 PM EST
Baltimore Marriott Waterfront
700 Aliceanna Street
Baltimore, MD 21202
Dress attire is Professional or after 5 dress. Children are welcome.
We hope to see you there! BTG Members of the organization will receive up to 2 tickets at no charge to attend the celebration. Please email email@example.com for promo code.
To purchase tickets: https://www.eventbrite.com/e/btg-5-year-anniversary-celebration-tickets-67320522495
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